What to do when a loved one has chronic kidney disease ?

How to support a loved one with chronic kidney disease in daily life ?

Chronic kidney disease (CKD) affects not only the patient’s life, but also that of their loved ones. As a carer, it is essential to understand the available resources so you can support your loved one effectively while also looking after your own wellbeing.

Providing emotional and moral support

Active listening : Offer a caring and attentive ear, allowing your loved one to express their emotions and concerns.
Positive attitude : Help maintain a calm and encouraging environment, which can make it easier for them to manage new medical routines.
Attending medical appointments : Your presence during consultations can strengthen communication with the healthcare team and improve understanding of treatment plans.

Adapting Daily Life

Adapting the home environment : Depending on the type of dialysis chosen, it may be necessary to set up a dedicated space at home.
Adjusting diet : Dialysis patients often need to monitor their intake of potassium, phosphate, salt and fluids. Limiting foods high in these elements is important to avoid complications.
Encouraging physical activity : When medically appropriate, tailored physical activity can help improve quality of life.
Supporting independence : Help with daily tasks while still encouraging autonomy wherever possible.

Accessing Support Resources

Support organizations : Groups such as the Association Française des Aidants offer resources, training and support groups for carers.
Financial and social support :
- Daily allowance for carers (AJPA) : : Financial support for carers who reduce or pause their work to care for a dependent relative.
- Carer’s leave: : Employees are entitled to take dedicated leave to support a relative with a disability or loss of independence.
- Personalized Autonomy Allowance (APA): : Financial aid for elderly people losing independence, which can also help fund support services benefiting carers.
Respite care options : Temporary care solutions such as day or night care, short-term residential stays, or in-home relief services can provide carers with time to rest.

Taking Care of Yourself as a carer

Protect your health: Make sure to look after your physical and mental wellbeing. Take breaks when needed and seek external support to avoid burnout.
Find support : Joining support groups or “carers’ cafés” can provide a space to share experiences and receive encouragement.

Supporting a loved one with CKD is a meaningful commitment. With good organisation, a strong support network and the right information, you can help improve their daily life while maintaining your own wellbeing.